Why? Because of the possible side effects?
I guess I should have clarified this a bit more.
With Cami I knew her and what she was capable of. I don't YET know Raine's true self, what she is capable of or if she could/would want to handle treatment that had the potential to cause side effects that might lessen the quality of life.
Cami was such a trooper and I knew that early on in as far as she pretty much always had to fight *something* be it d-mange, broken leg, allergies, cancer, heart, thyroid, etc...
Raine (at this point in time) seems more "fragile" to me (personality-wise) and since I don't quite know ALL of her I would think she wasn't able to handle something stressful. This could very well change as time goes on or she could very well surprise the heck out of me. She is more dependent where as Cami was much the opposite. I rely heavily on their personalities to help guide me with various treatments. Raine constantly runs in to things and gets "ouchies" she immediately looks to me to soothe her. Cami could run THROUGH something and I would know it was painful but she wouldn't miss a beat and surely didn't seek me out in those situations. She wanted me if she was not feeling well or frightened of something (Raine is fearless and has yet to not feel well).
Cami was more of a "let's kick this cancers butt" type of personality...."bring it on" (treatment) and Raine is more of a "you fix it mommy" type of girl (today at her young age). Again this could change and or my opinion of what I would feel up to might change.
You know your guy best based on your experiences in the past, the time spent together and how he has reacted to situations up till now.
I believe that Palladia had more success (or was more warranted) with tumors having a mitotic index above 5 (with respect to MCT's). The higher the number means more chance of the tumor returning. It tells you what a tumor is capable of (so to speak). A higher number often means a more aggressive form of the cancer (faster growing and a higher chance of metastases), although some cancers (tumors) can grow quickly but not spread to organs.
When Cami was so very sick the last 6 weeks of her life we tried everything they offered us. She was taking 22 pills per day. We knew going in that the cocktail they were trying had never been tried before. She wasn't a textbook case. One medication (for example) wasn't typically used to treat symptom A as it could cause symptom B but she already had B so what was it going to hurt (in their minds)?
I tried whatever they suggested because NO ONE ever told me that we were not going to "turn her around". I knew she was always going to have heart issues but we were trying to manage them. Had just ONE person told me that she wasn't ever going to get better I would have stopped trying....not stopping to help her but stop trying to fix her (if that makes sense)?
She told me herself (by refusing one of the meds out of the many she was taking). She knew better than me.
There isn't anything saying that you can't do a trial run with the medication. Be proactive with the potential side effects (nausea/diarrhea & things you can counteract and expect going in) and then choose to stop at the first sign of something worse (if it were to happen). It may prove to be beneficial in that the tumor shrinks or stops growing. No one will ever fault you for doing what you think is right. It is a hard decision to make. Like someone else mentioned as well.... sometimes doing nothing is also the right thing.
Sending you prayers that you can make a decision that helps you both. My heart breaks for you and the situation you are in.