Pray for Javi (once again)

[EAO76]

Oh my how heartbreaking. They are in my prayers. Please forgive this question if it comes off wrong... I am not at all judging but I am just curious why they are giving up? Have they been told there is no hope for recovery? I can’t even imagine their pain. But as a mom I can’t imagine not fighting either.

[BigDies]

I am very sad to report that Javier has died during the night. I will post more later.

[Murp.mm]

Oh my goodness. My deepest sympathy to the family of that little angel. That poor family what they must be going through. My thoughts and prayers are with them.

[kathysboxer]

I will be keeping them all in my thoughts and prayers. Such a brave young man at the mere age of 4. May God keep him in his arms. And may God send his angels down to help the family and comfort them.
Have fun at Disney!!

[Gruntsmom]

I'm so very sorry to hear that little Javier passed. Please extend my deepest sympathy to his family. I hope he was able to enjoy his trip to Disney World, and that his last days were peaceful and painfree. Rest in peace, Brave little Javier. I said a little prayer and asked my Grunt Boy to find you and watch over you.

[BigDies]

Originally Posted by Gruntsmom

I said a little prayer and asked my Grunt Boy to find you and watch over you.

Javier loved dogs so I know that he would be very happy to see your boy.

I saw Javi last Saturday just 5 days before he passed and he looked so amazing. He was up and running (much to the dismay of his very worried parents) and talking and playing. Since they stopped his meds, including his steriods, his swollen little body had gone back to looking normal and I got to appriciate how tall and skinny he was (his mom and dad are both over 6 feet). He gave me a big huge kiss and hug goodbye and that was the last memory I will have of him.

He deteriorated very quickly and on thursday morning the hospice said that they didn't think he had more than a couple of days left. I went over and took big brother Diego out while the parents stayed close to Javi and we bought him a new toy (the whole time Diego kept insisting that we get toys for Javier...he's an amazing brother) and we went and got some ice cream. By the time that we made it back home Javier had become even worse (I was told, I never saw or spoke with him or the parents) and they knew that he would not make it much longer. He died late that night.

It's terrible and tragic and extreamly unfair to have to lose a child, especially one as amazing as Javi. I am glad though, that it happened so quick in the end. He didn't have to be bed ridden or in pain for very long. His prayer service was last night and it was the hardest thing I've had to do. They took many BEAUTIFUL pictures and videos and it was a wonderful service, but his little body just didn't look right in the casket.

The funeral is at 2 so I need to go get ready. Thank you all for the wonderful thoughts and prayers. I know Javi has gone home because God needed someone to play catch with. He is an amazing, amazing boy.

[atlasmom911]

))))Tears(((( My prayers go out to this sweet baby parents.

[marciafinn]

My thoughts, prayers and sympathies are with Javier's family and all close to him.

[jettriley]

I`m soo sorry. My prayers are with you and his family and friends.