Minor update
Visited with the cardiologist today. Cami spent 3 hours undergoing various tests. Came home with a holter.....much to her dismay. She hates it with a passion however I am quite pleased since we were told that if the results of the EKG today were GOOD she would get a holter.
Blood pressure was normal, and we are waiting for the results of the blood tests to see where her liver and kidney values are. Hoping they have started to come down.
And......
There has been a SLIGHT increase in heart function. I am talking about a teeny tiny bit of improvement! Still nothing to do a happy dance about but at least it wasn't worse and they still hold out hope that further improvement will occur.
Found out that the heart meds can be taken together so that will help the dosing schedule to my advantage mostly in the AM. Thank GOD!
Now I feel like the worst mom ever. Got home after her medication was due but thought I would give it to her later and just stay up later to make up for the final dose of the day.
Totally slipped my mind!
Another medications time came and went as well and I forgot it! YIKES!!!
Finally gave them both together since I CAN.
She won't get any more meds tonight except for her thyroid......I can go to bed at 11pm.
Start everything back up tomorrow morning.
I can go to sleep early but feel just awful that I forgot those two doses.
She is acting like she is uncomfortable with the holter on and it breaks my heart. She doesn't seem to be taking a full deep breath. I know it isn't too tight.....checked like 10 times. She keeps doing the Boxer lean against me and wanting me to DO something to help her. Tomorrow at 3:30 it comes off and we will get the results sometime late next week.